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ahimsa

"New study suggests people who tested negative for Covid-19 can still develop long Covid"

"A new study suggests that even more people may be suffering from the post-viral syndrome without having ever received an official diagnosis of Covid-19.

The study … was small, examining only 29 patients. But it offers unique insights into how many cases of long Covid may go unidentified …"

statnews.com/2023/08/23/long-c

“We estimated that there were approximately 10 million people in the first year of the pandemic in the U.S. who are in this predicament: who got Covid, got long Covid, but tested negative for Covid,” said Igor Koralnik, who led the study and is the chief of the division of neuroinfectious diseases and global neurology at Northwestern Medicine. The findings of the study suggest that a positive diagnosis for Covid-19 should not be a requirement for treating people whose symptoms are in line with long Covid, said Ziyad Al-Aly, a clinical epidemiologist at Washington University in St. Louis, who was not involved with the study.
#Covid#Covid19#LongCovid
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ahimsa

Changing the topic to ME/CFS -

If it's true that there are now about 34 million people in the USA with Long Covid (1/3 of the 103 million COVID infections), and if roughly half of Long Covid patients meet the ME/CFS criteria (several studies have shown this), then that means there are roughly 17 million new cases of ME/CFS caused by the pandemic.

Is my math wrong? That would mean more post-pandemic cases of ME/CFS than pre-pandemic cases.

Of the 103 million confirmed cases of Covid-19 in the U.S., an estimated one-third have led to long Covid — a condition that ranges in severity, but can be debilitating. A new study suggests that even more people may be suffering from the post-viral syndrome without having ever received an official diagnosis of Covid-19.
#LongCovid#PostCovid#MEcfs
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ahimsa

I think both of those estimated percentages (1/3 of COVID infections = Long Covid, and 1/2 of Long Covid = ME/CFS) might be a bit high.

But even so it's a big number.

ahimsa

That Stat News article didn't mention ME/CFS.

But I just noticed that one of the links in the first paragraph (on the word debilitating) goes to an article from January about a woman with Long Covid who also has an ME/CFS diagnosis:

‘I want people to see us’: A writer gives voice to long Covid and mothering from bed

statnews.com/2023/01/09/living

What have you been formally diagnosed with, and what does managing those conditions look like? It’s taken a series of doctors over a year and a half for me to get diagnosed with fibromyalgia (which I’m not sure I actually have), myalgic encephalomyelitis (ME), POTS (postural orthostatic tachycardia syndrome), and long Covid. I also have mild sleep apnea and REM sleep behavior disorder. Managing these together is challenging, because, for example, POTS is helped by exercise but ME and LC bring exercise intolerance and post-exertional malaise (PEM), which means I have to limit exertion.
#LongCovid#MEcfs#POTS
Aug 28, 2023, 01:43 AM·Public·Web
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