Recent searches
Search options
Administered by:
️(he/him) 
Medscape:
"Second Infection Hikes Long COVID Risk: Expert Q&A"
"People infected multiple times with COVID-19 are more likely to develop long COVID, and most never fully recover from the condition. Those are two of the most striking findings of a comprehensive new 3-year research study of 138,000 veterans"
"Some patients do experience some recovery. But that's not the norm. Most people do not really fully recover"
I don't want to sound critical, happy to read about more Long Covid research.
But this was a WTF moment:
"This whole thing taught us that infections can cause chronic disease. That's really the number-one lesson that I take from this pandemic — that infections can cause chronic disease."
It took Long Covid for doctors to learn infections can cause chronic disease?
I know ME/CFS research is sparse, but are there no studies showing ME/CFS can be triggered by infection?
@ahimsa_pdx there certainly are. The number one lesson *I've* learned from this pandemic is that most doctors don't keep up with the literature in their field
@currentbias Sadly, this is true.
@ahimsa_pdx Tons of chronic diseases are associated with infectious pathogens, at least some of them with the pathogens as a cause, including 15–20% of cancers, and many, including Crohn's and Celiac, that are or can be set off by the combination of a pathogen and other factors. This list has 70–80 different diseases: https://me-pedia.org/wiki/List_of_chronic_diseases_linked_to_infectious_pathogens
This link is also relevant: https://www.ncbi.nlm.nih.gov/books/NBK83680/
@lauhazn Yep! Thanks for the link. 
@ahimsa_pdx
well... yes, apparently...
it's infuriating
@ahimsa_pdx This has been known for decades. See the 1988 paper linked to in my post this morning.
@bhawthorne I thought so, but it's so surprising to see doctors saying it's a new concept that I start to doubt myself.
@ahimsa_pdx Since there are no doctors in the USA who focus on post-infectious disease syndromes, those conditions essentially fall through the cracks in medical education. My son has been disabled by a post-infectious disease syndrome for the past 15+ years, and it wasn’t until I got LongCovid last year and started having similar symptoms that we even discovered the term. None of the pediatric neurologists, neurologists, or other specialists around the northeast US that we and he consulted ever mentioned this as a possible etiology. Despite the fact that his onset was just months after hospitalization for an acute and life-threatening infection.
@bhawthorne
I got ME/CFS in 1990 so I know it exists. I know many other folks with it. And I know many cases seem to be triggered by an infection of some kind.
What I don't know is how good the research is on proving that viral infections can be a cause vs. a well known correlation.
In short, I don't doubt that infections seem to cause ME/CFS! I do doubt my own understanding of research that's been done on post-infectious disease, ME/CFS and others. I lack the medical background & brainpower.
@ahimsa_pdx @bhawthorne
Have you heard of Tapanui Flu, which caused major problems 40 years ago? It seems to have been the basis for a lot of research on ME/CFS.
https://me-pedia.org/wiki/1984_Tapanui_%26_West_Otago_Outbreak
@adminkirsty
I've read a lot about ME/CFS research over the past 30+ years so I think I've heard of this. However, with my cognitive issues / bad memory I don't remember a lot about it so thanks for the link.