Create accountLogin

Recent searches

No recent searches

Search options

Not available on disabled.social.
disabled.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

Administered by:

Server stats:

227
active users

disabled.social: AboutPrivacy policy

Mastodon: AboutGet the appKeyboard shortcutsView source codev4.3.6

Tom Kindlon

Sympathetic article; quotes 3 German experts

"Years after the pandemic, has the threat of subsided?"

yahoo.com/news/years-pandemic-

Includes this "Depending on the symptoms, doctors will often recommend exercise therapy ..." but then that can be true for people without PEM

@longcovid

@covid19
@novid@chirp.social @novid@a.gup.pe

1/

dpa international Years after the pandemic, has the threat of Long Covid subsided? DPA Mon, February 24, 2025 at 3:33 PM GMT5 min read 4 Many Long Covid sufferers first have to learn to accept that even small household tasks burn up a huge amount of energy. Annette Riedl/dpa Many Long Covid sufferers first have to learn to accept that even small household tasks burn up a huge amount of energy. Annette Riedl/dpa After the initial global shock of the pandemic, another followed. Some people, it emerged, were surviving an infection, but not making a full recovery. About four years ago, it started to become clear that Sars-CoV-2, the coronavirus behind the pandemic, could impair mental and physical performance well beyond the initial infection. The phenomenon of symptoms lasting longer than four weeks has long since been given a name - Long Covid. However, medicine is still a long way from curing the causes of such long-term effects.
Feb 25, 2025, 03:50 PM·Public·Web
10boosts·4favorites
Public
Tom Kindlon

2/

“Probably the most feared manifestation of post-Covid is ME/CFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome”. There are a few paragraphs then discussing ME/CFS.


@mecfs @longcovid @covid19 @novid@chirp.social @novid@a.gup.pe @mecfs_de

Public
Tom Kindlon

3/

"Some are so severely ill that they have completely lost their previous lives," says Stallmach. So far, no convincing therapy has been found for this either. "But I am optimistic that this will change in the next few years."

@longcovid @covid19 @novid@chirp.social @novid@a.gup.pe

Public
doneknitting

@tomkindlon @longcovid @covid19 @novid@chirp.social @novid@a.gup.pe
"It's unacceptable to say 'That's just how it is'. We must not accept this, we must not forget these patients."

alas, that's exactly what's been done with #MEcfs

Public
dotsie

@doneknitting @tomkindlon @longcovid @Covid19 @novid@chirp.social @novid@a.gup.pe I was shocked to see a couple news sources acknowledge PVS this week news.yale.edu/2025/02/19/immun

And of course they don’t mention CFS at all, which is sometimes linked to Epstein-Barr… and also Covid itself. Ridiculous.

Note: I’m not anti-vaccination! I just hope study in this area will benefit all patients but it’s troubling, if not surprising, they left CFS out of the reporting.

Yale News · Immune markers of post vaccination syndrome indicate future research directionsA small number of people report chronic symptoms after receiving COVID-19 shots. A new study provides clues for further research.
Explore
About