disabled.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

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Tom Kindlon

"Showering: self-care or self-sabotage?" short blog post by a woman with and ME.
chronicallycraptastic.com/show

"It sounds counterintuitive, but it pans out for people with ME/POTS, sometimes NOT showering is a form of self-care"

@mecfs
@chronicillness
@spoonies
@pots

@tomkindlon @mecfs @chronicillness @spoonies @pots Based on what the author describes, I wish I could share with them a number of tips that save energy including a shower seat, a towel robe and/or hair wrap for drying, a hairdryer soft bonnet attachment to avoid having to hold the dryer, the help of a family member or aide, and so on.

@ehashman I appreciate these tips; I've been following most of them, especially with the help of my S.O. who washes my hair for me, so I don't have to spend that time with my arms elevated.

Even with all the extra help, showering is still a really exhausting chore. :( I think a lot of it is temperature disregulation; my body shivers *so much* when I'm not directly under the warm stream of water, which consumes a lot of energy. We've been talking about getting heat lamps installed in our bathroom to help with this, but it's complicated!