"Showering: self-care or self-sabotage?" short blog post by a woman with #POTS and ME.
https://chronicallycraptastic.com/showering-self-care-or-self-sabotage/
"It sounds counterintuitive, but it pans out for people with ME/POTS, sometimes NOT showering is a form of self-care"
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @chronicillness
@spoonies
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots
@tomkindlon @mecfs @chronicillness @spoonies @pots Based on what the author describes, I wish I could share with them a number of tips that save energy including a shower seat, a towel robe and/or hair wrap for drying, a hairdryer soft bonnet attachment to avoid having to hold the dryer, the help of a family member or aide, and so on.
@ehashman I appreciate these tips; I've been following most of them, especially with the help of my S.O. who washes my hair for me, so I don't have to spend that time with my arms elevated.
Even with all the extra help, showering is still a really exhausting chore. :( I think a lot of it is temperature disregulation; my body shivers *so much* when I'm not directly under the warm stream of water, which consumes a lot of energy. We've been talking about getting heat lamps installed in our bathroom to help with this, but it's complicated!