disabled.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

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ahimsa

From Ben HsuBorger at :

"Why I Joined a Stand Up for Science Rally"

meaction.net/2025/03/12/why-i-

"I have lived as an ME/CFS 'spoonie' for the past 20 years after I got a virus and never recovered. I’ve spent much of the past 10 years of my career advocating for ME/CFS research at the NIH"

"I don’t want to see the same scientific harms that have happened in the ME community become even more widespread across all of science"

@mecfs

For examples of scientific harm done to ME/CFS patients see this video by @brokenbattery

It lists many issues, including the CDC renaming the illness in 1988 and the PACE trial, a flawed research study that has not yet been retracted:

youtube.com/watch?v=RiwX9Y0Nbi

"George Monbiot describes the treatment of Myalgic Encephalomyelitis as 'the greatest medical scandal of the 21st century' …'"

Transcript:

medium.com/@abrokenbattery/me-

@mecfs