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Tom Kindlon

(Australia-wide survey)
Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or ?

"The Australian e-Health Research Centre at CSIRO ... is conducting a survey to understand the research priorities of the community"

Link:
csiro.qualtrics.com/jfe/form/S

@mecfs
@longcovid

@auscovid19

1/

Are you living with, caring for, or treating someone with Long COVID or Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS)? We want to hear from you! The Australian E-Health Research Centre (AEHRC) and Monash University have partnered with Emerge Australia to conduct a study seeking to understand the research priorities of people living with, caring for, or treating someone with Long COVID or ME/CFS. We also want to understand the major challenges they currently face in accessing quality care. M= The AEHRC, Monash University and Emerge Australia are currently recruiting participants aged 18 years or older to participate in an online survey which is expected to take around 15 minutes to complete. Participants will also have the option of participating in a further interview, should they choose, expected to take around 30 minutes. The interview can be undertaken over multiple sessions is needed or via email response. Participation is voluntary and you do not have to take part if you don't want to. You can choose to participate in only the survey if you wish. For additional information about the project please click the link below to view the Participant Information Sheet and access the survey. Access the information sheet and survey here Australian e-Health CSIRO Research Centre MONASH University emerge australia Contact Person: Dr Alana Delaforce, Australian E-Health Research Centre, alana.delaforce@csiro.au 296 Herston Road, Herston, Qld, 4029 P: 07 3253 3647
Mar 13, 2025, 02:40 AM·Public·Web
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Tom Kindlon

2/
"Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or long-COVID?

The Australian e-Health Research Centre at CSIRO, in partnership with Emerge Australia..., is conducting a survey to understand the research priorities of the community"

@mecfs @longcovid @auscovid19

Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or long-COVID? The Australian e-Health Research Centre at CSIRO, in partnership with Emerge Australia and in collaboration with Monash University, is conducting a survey to understand the research priorities of the community. Your feedback will help shape the research, and the methods used. The survey will take about 15 minutes to complete. For further information contact Dr Alana Delaforce. ACCESS THE SURVEY
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