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ahimsa

"COVID-19 Triggers ME/CFS"
by Suzanne D. Vernon

batemanhornecenter.org/covid-1

"…we found that among participants infected with SARS-CoV-2, the incidence of ME/CFS—defined using the Institute of Medicine (IOM) diagnostic criteria—was 15 times higher than pre-pandemic rates"

"531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants"

@mecfs @longcovid

The RECOVER study, which has collected data from more than 15,000 adult participants over the past four years, provided us with an unprecedented opportunity to determine whether ME/CFS occurred after being sick with COVID-19 and the overlap between ME/CFS and Long COVID. In a paper published today in the Journal of General Internal Medicine, we found that among participants infected with SARS-CoV-2, the incidence of ME/CFS—defined using the Institute of Medicine (IOM) diagnostic criteria—was 15 times higher than pre-pandemic rates. Of the 4,515 participants who enrolled within 30 days of contracting COVID-19, 73 developed ME/CFS at least six months post-infection. In total, 531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants. This prevalence is five times higher than pre-pandemic estimates and underscores the severe and lasting impact of COVID-19 on public health.
#COVID#MEcfs#LongCovid
Jan 13, 2025, 05:58 PM·Public·Web
23boosts·15favorites
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ahimsa

Here's a link to the study she is discussing, published in the Journal of General Internal Medicine:

"Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study"

link.springer.com/article/10.1

@mecfs @longcovid

SpringerLinkIncidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study - Journal of General Internal MedicineBackground Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may occur after infection. How often people develop ME/CFS after SARS-CoV-2 infection is unknown. Objective To determine the incidence and prevalence of post-COVID-19 ME/CFS among adults enrolled in the Researching COVID to Enhance Recovery (RECOVER-Adult) study. Design, Setting, and Participants RECOVER-Adult is a longitudinal observational cohort study conducted across the U.S. We included participants who had a study visit at least 6 months after infection and had no pre-existing ME/CFS, grouped as (1) acute infected, enrolled within 30 days of infection or enrolled as uninfected who became infected (n=4515); (2) post-acute infected, enrolled greater than 30 days after infection (n=7270); and (3) uninfected (1439). Measurements Incidence rate and prevalence of post-COVID-19 ME/CFS based on the 2015 Institute of Medicine ME/CFS clinical diagnostic criteria. Results The incidence rate of ME/CFS in participants followed from time of SARS-CoV-2 infection was 2.66 (95% CI 2.63–2.70) per 100 person-years while the rate in matched uninfected participants was 0.93 (95% CI 0.91–10.95) per 100 person-years: a hazard ratio of 4.93 (95% CI 3.62–6.71). The proportion of all RECOVER-Adult participants that met criteria for ME/CFS following SARS-CoV-2 infection was 4.5% (531 of 11,785) compared to 0.6% (9 of 1439) in uninfected participants. Post-exertional malaise was the most common ME/CFS symptom in infected participants (24.0%, 2830 of 11,785). Most participants with post-COVID-19 ME/CFS also met RECOVER criteria for long COVID (88.7%, 471 of 531). Limitations The ME/CFS clinical diagnostic criteria uses self-reported symptoms. Symptoms can wax and wane. Conclusion ME/CFS is a diagnosable sequela that develops at an increased rate following SARS-CoV-2 infection. RECOVER provides an unprecedented opportunity to study post-COVID-19 ME/CFS.
#COVID#MEcfs#LongCovid
Public
ahimsa

One last quote:

"The COVID-19 pandemic has been a stark reminder of the complex and lasting impact that viral infections can have on human health.

The rise in ME/CFS cases is a wake-up call for the medical community.

Now is the time to act, to educate, and to provide the compassionate care that can transform lives."

batemanhornecenter.org/covid-1

@mecfs @longcovid

Bateman Horne Center · COVID-19 Triggers ME/CFSThe emergence of SARS-CoV-2, the virus responsible for COVID-19, swept across the globe with an unparalleled speed and severity. As a researcher dedicated to understanding how viral infections lead to…
#COVID19#CovidIsNotOver#LongCovid
Public
Bruce Mirken

@ahimsa_pdx @mecfs @longcovid Completely unsurprising to those of us who follow #LongCovid, but important nonetheless.

Public
ahimsa

@BruceMirken
Yep. I've had ME/CFS since 1990.

It seemed pretty obvious to me that the pandemic would increase the number of ME/CFS cases but it's nice to have some numbers to back that up.

I think that if ME/CFS had been more widely known before the pandemic started then the term Long Covid might not have been invented. I realize that not all Long Covid cases meet the ME/CFS diagnostic criteria but many of them do.

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