disabled.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

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active users

Stuff (New Zealand):

Mothers' devastation as daughters develop the same debilitating illness that can mean years in bed

"They are known as the “millions missing” – missing from their homes, the workforce, society and even their own families. Kristie Boland speaks to some of the silent sufferers of [ME/CFS], including two mums and their daughters."

bit.ly/41cKlRo

Tom Kindlon

2/

Includes a two-minute interview with a woman bedbound with whose weight dropped so low she needed a nasogastric tube for feeding. Also featured is a young woman who is now a long term patient in a hospital.

@severeme