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Tom Kindlon

"we recommend that rather than including patients merely for their ‘lived experience’, people living with complex chronic conditions should be systematically integrated into clinical & research teams as knowledge partners"

mh.bmj.com/content/51/1/34.ful

From latest Science for ME weekly update

@mecfs

Medical Humanities Patients as knowledge partners in the context of complex chronic conditions — Vox Jo Hsu et al. "we recommend that rather than including patients merely for their ‘lived experience’, people living with complex chronic conditions should be systematically integrated into clinical and research teams as knowledge partners. These patients occupy unique and valuable epistemological positions, and their knowledge, from experiential to scientific, should be considered with as much openness and rigour as other forms of medical knowledge."
Mar 04, 2025, 10:33 PM·Public·Web
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