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Tom Kindlon

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"Far From Rare: A Common Disease Hidden in Plain Sight: Why ME/CFS Needs to be Recognized Now"

batemanhornecenter.org/a-commo

Comment: While there is possibly nothing new here for many of us, I think it does summarise a lot of the important issues in the field

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“Despite its widespread impact, up to 90% of people with ME/CFS remain undiagnosed, often after years of searching for answers.”


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“Many [with ME/CFS] experience medical gaslighting, misdiagnoses, and treatments that fail to account for the disease’s hallmark symptom: post-exertional malaise (PEM)—where even minor exertion can lead to debilitating symptoms and functional decline.”


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“The consequences are staggering:  (see image)”

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“For decades, patients with ME/CFS have faced …”


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“The Path Forward: Turning Awareness Into Action …”

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From “Far From Rare: A Common Disease Hidden in Plain Sight” by the Bateman Horne Center


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