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A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

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ahimsa

I have ME/CFS and I've experienced similar disbelief from others, including doctors, since 1990.

("but you don't *look* sick ...")

I am so sorry that Long Covid patients are going through the same thing! 😢

medicalxpress.com/news/2025-03

"People living with long COVID often feel dismissed, disbelieved, and unsupported by their health care providers, according to a new study from the University of Surrey."

@longcovid @mecfs

"We found that the problem isn't people with long COVID refusing help—it's about the deep need for people to be believed. When a patient feels dismissed, offering psychological support instead of medical care can be misconstrued as insulting," said Professor Jane Ogden, Professor of Health Psychology.
#LongCovid#MEcfs#PublicHealth
ahimsa

@longcovid @mecfs

I want to add that "offering psychological support instead of medical care" is not helpful. It is indeed insulting.

If you offer psychological care *in addition to* or *as part of* the overall care then that's fine. But it should never be offered *instead of* medical care.

Maybe this is a misquote by the author? I don't know, but the way it is stated here is wrong.

Psychological support can be very helpful! But it is never a substitute for other medical treatment.

Mar 26, 2025, 08:36 PM·Public·Web
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