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disabled.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

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Apple Annie :blobhug2mask:

Finally getting back around to making an

Hello, all, I’m Anne. I’ve had ME/CFS for ~30 years. Back then they still called it CFS and the treatment I got from doctors was pretty traumatizing.

I stopped talking about my illness, I was young, I developed habits that allowed me to exist and keep it mostly hidden. Little did I know this was all about pacing, but I had no term for it.

Nov 20, 2022, 07:09 PM·Public·Web
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Apple Annie :blobhug2mask:

This stable period lasted about 15 years, until work-induced burnout forced me to leave my career in web development and I’ve been on hiatus since 2019.

Of course, that turned out to be terrible timing with the pandemic, and then trying to recover from burnout I had a bad reaction last November to my Covid-19 booster and consider myself to be on the mild-to-moderate side of the illness now.

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Apple Annie :blobhug2mask:

If one good thing comes from this pandemic it will be what we get from the community. I am thankful that I recognized almost immediately what was going to happen, and it got me reading about my own illness again. While there have been strides made, it still shocks me how little the medical community has done in 30 years about .

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