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From Medscape (widely read by health professionals):
"What Not to Say to People With Complex Chronic Illness"
https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft
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@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
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“For people with complex chronic diseases such as long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and dysautonomia, a clinician’s inadvertently hurtful language can compound suffering and derail effective communication.”
#Dysautonomia #PwME #mecfs #longcovid
@mecfs @longcovid @dysautonomia
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“Who is the target audience for the paper?
Physicians of all specialties and other healthcare practitioners, such as psychologists, physical therapists, social workers, nutritionists, and others.”
#MedEd #Mastodon #mecfs #longcovid
@mecfs @longcovid @dysautonomia
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“We focus on common phrases that clinicians often tell patients, but which can be nonproductive, inappropriate, and frankly, damaging to the physician-patient relationship.”
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“Clinicians might say to a person with a hidden illness, “You don’t look sick.” We explain that a patient can feel very sick despite looking healthy. Instead, we simply recommend refraining from commenting on a person’s appearance.”
#hiddenillness #invisibleillness
@spoonies @mecfs @longcovid @chronicillness
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@spoonies @mecfs @longcovid @chronicillness
Another example is, “Good news. Your tests are all normal.” We explain that this might not be viewed as “good news” to a patient who still feels sick. An alternative is, “The tests we have run so far are not showing any abnormalities, and the good news is we have excluded certain conditions based on the results of those tests.”
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“With this paper, we hope to highlight the wide gap in communication and attitudes among clinicians and other healthcare practitioners toward a patient population that has been largely neglected by the medical community, but that deserves equally effective and compassionate care as patients with diabetes or heart disease.”
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“I think it’s important for clinicians of all specialties to get educated on how to recognize, diagnose, & manage patients with ME/CFS, long COVID, and dysautonomia because there are simply not enough specialists to absorb a rising number of these patients. The first step is to understand & acknowledge that these disorders are not psychologically based & are not functional in etiology”
@mecfs @longcovid @dysautonomia #mecfs #longcovid #Dysautonomia
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Medscape: What Not to Say To People With Complex Chronic Illness
https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft
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