disabled.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

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“The field of ME/CFS is ripe for clinical trials,” Lipkin, who directs the center, told Fierce Biotech in a March 19 interview. “These cuts have brought our work to a dead halt.”


@mecfs

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Patients with ME/CFS are often bed-bound, unable to seriously exert themselves lest they risk making their tiredness worse—a symptom called post-exertional malaise.

“My mom, she calls it the symptom of her own personal hell,” Taylor said. “If there is something that you love to do, this disease will punish you for it. If you like to read, you can't do that. If you like
to dance, you can't do that.”

@mecfs