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disabled.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

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Tom Kindlon

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"Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher."

sciencenorway.no/chronic-fatig

@mecfs

1/

Almost no ME/CFS patients return to work "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher. The Norwegian Labour and Welfare Administration requires ME/CFS patients to go through work-oriented measures in order to be granted disability benefits, which is a challenge for many patients. (Photo: Gorm Kallestad / NTB) Emilie Wee Journalist Published 21 March 2025 - 00:01
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Tom Kindlon

2/

“They see [in the research data] that very few of the patients were well enough to work again, even nine years after diagnosis. These are disappointing results, but unfortunately not particularly surprising.”


@mecfs

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Tom Kindlon

3/

“Many patient stories show that those who try to adapt to the labor market often experience relapse. Working life is largely not adapted for people with low and varying work capacity, says Trude Schei, assistant secretary general of the ME Association.”


@mecfs

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Tom Kindlon

4/
Volunteer in Norwegian ME Association:
“There are days or weeks when I can't do anything. Few employers will hire someone who disappears for an extended period of time due to illness. It makes it difficult to return to work, especially if you don't get better.”


@mecfs

Tom Kindlon

5/

“We need more research to understand the disease mechanisms behind ME and develop more targeted treatments. The healthcare system should listen more to patients,”


@mecfs

Mar 21, 2025, 05:54 PM·Public·Mastodon for iOS
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Tom Kindlon

ScienceNorway: Almost no ME/CFS patients return to work

sciencenorway.no/chronic-fatig

Image is from the latest Science for ME weekly update

@mecfs

ScienceNorway Almost no ME/CFS patients return to work An article about a study on ME prognosis based on wage development. Professor Karl Johan Tronstad comments: "As long as there's no effective treatment, many remain chronically ill. The study suggests that the help patients have received through the welfare and healthcare systems has had little rehabilitative effect," One of the researchers behind the study, Anne Kielland comments: "We can only acknowledge that our results were disheartening and indicated that the current policy measures for this group have not yielded significant improvements in their ability to regain income capacity,"
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Looking for explanations…

@tomkindlon

It does happen, but they need family & employer support.

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