Back

2/

“They see [in the research data] that very few of the patients were well enough to work again, even nine years after diagnosis. These are disappointing results, but unfortunately not particularly surprising.”

#MEcfs #PwME #CFS
@mecfs

3/

“Many patient stories show that those who try to adapt to the labor market often experience relapse. Working life is largely not adapted for people with low and varying work capacity, says Trude Schei, assistant secretary general of the ME Association.”

#PwME #MEcfs
@mecfs

4/
Volunteer in Norwegian ME Association:
“There are days or weeks when I can't do anything. Few employers will hire someone who disappears for an extended period of time due to illness. It makes it difficult to return to work, especially if you don't get better.”

#MEcfs #PwME
@mecfs

5/

“We need more research to understand the disease mechanisms behind ME and develop more targeted treatments. The healthcare system should listen more to patients,”

#MyalgicEncehalomyelitis #ChronicFatigueSyndrome
#mecfs @mecfs

@tomkindlon

It does happen, but they need family & employer support.